Improve the Quality of Your Palliative Care Program Through Registry Participation

Robust palliative care data provides insights and supports advancements in care for those with serious illness. The PCQC Registry collects and collates your data, generates reports, and provides opportunities for action.


PCQC offers three ways to participate in our Registry. We encourage you to participate in all three.

Basic Membership: Create and maintain a Program Profile

Cost: Free

Description: Annually provide basic information about your palliative care program. Within the program profile, you have the option to display your program's information in the provider directory on https://getpalliativecare.org. Get Palliative Care is a website providing clear, comprehensive palliative care information for people living with a serious illness.

Advanced Membership: Annual Program Surveys and Reports

Cost: Free

Description: Annually, palliative care programs submit data about their program reflecting the previous year. This survey provides actionable data that programs can use to secure, expand and retain resources for delivery of high-quality palliative care, and to support the establishment of new palliative care programs where none exist. Data is collected on all service settings across the continuum of care, including hospital, long-term care, office/clinic, and home-based palliative care. For programs that previously contributed data to the former National Palliative Care Registry™, your historical data is saved in the PCQC registry and you should now complete your annual surveys within the PCQC registry.

During 2022 you will report on 2021 data. The survey questions are available for your review. You can access a pdf version of the Annual Program Hospital Survey questions here, and a pdf version of the Annual Program Community Based Survey questions here. 

Premium Membership: Clinical Data Capture and Reports

Cost: Cost will vary depending on the type and size of your program. Reach out to PCQC via info@palliativequality.org to schedule a meeting to discuss a quote for your program.

Description: The PCQC Clinical Data Capture and Reports is a collection of standardized data that include clinical outcomes for each patient. Members can generate reports to monitor their program and to benchmark outcomes to peer groups. Premium Members also have access to monthly programming through the Premium Member Collaborative.


For those interested in participating in the registry as a Premium Member, which includes clinical data capture, you will need to complete legal documents to allow for data sharing. PCQC has the following official contracting documents available:

*Exhibit A will be completed after a conversation with PCQC. When you are ready to sign up, please download, review with your legal team, and return to info@palliativequality.org.

Features

Basic: Annual Program Profile

Advanced: Annual Program Survey and Reports 

Premium: Clinical Data Capture and Reports

Cost

Free

Free

Yes

Listing on GetPalliativeCare.org

Yes

Yes

Yes

Highlighted listing on GetPalliativeCare.org

 

Yes 

Yes

Reports that compare your program to peer programs on metrics like staffing and penetration

 

Yes

Yes

Reports that compare your program to peer programs on metrics like patient outcomes 

   

Yes

Opportunity to participate in Educational and Networking Programs

   

Yes

Opportunity for EHR integration 

   

Yes

 
Benefits of Participation

Reasons to join the PCQC:

  • Improve patient care through rapid cycle quality improvement
  • Explore EHR integration
  • Empower palliative care service providers to demonstrate their value to health systems
  • Assure the quality of palliative care services
  • Create a national peer network and collaborative quality projects
  • Design, test and implement quality measures that matter for seriously ill patients
  • Collect and report data on quality measures in value-based purchasing agreements with payers
  • Create a learning health system for the seriously ill
  • Ensure that data from different providers measures the same thing – using a standardized approach to increase confidence, consistency, reliability, and benchmarking capabilities
  • Improve palliative care research efforts


What is the fee associated with becoming a PCQC member?

Membership with access to program-level data reporting: Free

Participation in Basic and Advanced Membership (structures and processes) is available free of charge for all palliative care organizations.

Membership with access to program-level AND patient-level data reporting: the fee to participate in Premium Membership is based upon program size and volume. Discounts apply for bulk purchases and pediatric and safety net programs. If you are curious about the specific cost for your program, reach out directly to PCQC at info@palliativequality.org for a price quote.

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